Making Sense of Medicine: Bridging the Gap Between Doctor Guidelines and Patient Preferences
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Reframing medicine: possibilities for paradigm shift

11/18/2014

2 Comments

 
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First, go read this incredible editorial by Trisha Greenhalgh about the dead-ends of evidence-based medicine and the off-road routes to a new paradigm.

Then, consider the following possibilities for paradigm shift I have roughed out, and see which alternative appeals most to you.

Paradigm shift possibility 1:
EBM is primary - modified by individual circumstances


Paradigm shift possibility 2:
The patient is primary - we use evidence to inform their judgment and preferences

Paradigm shift possibility 3:
The relationship is primary: people need caregivers and guides

Paradigm shift possibility 4:
Self-care is primary - encourage strategies avoiding tail-eating-snake of overuse

What do you think? Let me know in the comments!

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Patients, families, and caregivers - help me understand how you react to uncertainty!

11/5/2014

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Uncertainty is a common experience in health care. For an upcoming book and ongoing research project, I want to be in contact with patients, families, and caregivers to learn their strategies for approaching, dealing with, and understanding such uncertainty.

For example, Ms. A. has back pain unaccompanied by underlying serious disease. She has no way of knowing whether it will go away in weeks, months, or not at all. She wants an MRI, which accepted evidence indicates will neither aid in treating her pain nor reassure her.

On the one hand, both she and the healthcare provider would like to do “something” as a sign of care; on the other hand, we want to harm neither Ms. A (with tests/procedures that won't work), nor society (afflicted by a health care system which costs too much, delivers poor care in comparison to other systems, and treats people unequally).

There are many scenarios in which treatment is pursued despite evidence showing it does not work more than placebo. For example, hormone treatment in the patient with local (not metastatic) prostate cancer; repeated CT scans for thyroid nodules without symptoms; treatment of ductal carcinoma in situ (DCIS), mammograms in a patient without significant family history more often than every two years.

How do you as a patient, family member, or caregiver seek the best care in such a situation, where things are uncertain and more tests/procedures might not work? What strategies do you use? What should healthcare providers do? Please be in touch with me to help guide this work. zberger1 at jhmi dot edu

See the presentation below for another depiction of the problem.

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    Author

    The author of Talking To Your Doctor and Making Sense of Medicine blogs about the books, shared decision making, doctor-patient communication, and the redeemable imperfections of healthcare.

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